Friday September 25, 2015
Proceeds benefit NBIA Research
Call Rick at 412-492-7495
Thank you to our Sponsors
Our son, Adam, was diagnosed with Neurodegeneration with Brain Iron Accumulation (NBIA) in March 2007. NBIA is a rare, genetic, progressive neurological disorder that affects approximately two people per million. The common feature among all individuals with NBIA is iron accumulation in the brain, along with a progressive movement disorder, which can result in clumsiness, difficulty controlling the body and speech problems. Some individuals eventually lose the ability to walk, talk,
and become totally dependent on others for all their needs.